Family Finds Gratitude and New Hope through Experience with a Rare Childhood Condition

When Cooper Norris was just two years old, his pediatrician noticed some freckling and café au lait spots on his back. The pediatrician told his parents, Kirsta and Michael, they would need to monitor this. But by age four, Cooper had developed a lump on the left side of his neck. An ultrasound of the lump led the family to a geneticist who confirmed that it was a benign tumor called a plexiform neurofibroma (PN) caused by neurofibromatosis type 1 (NF1) – a neurogenetic condition caused by mutations in the…